From the Journals

The Missing Step in Pediatric Lupus Care

Survey data show gaps between rheumatologists’ beliefs and clinical practice in screening and neuropsychological evaluation for childhood-onset systemic lupus erythematosus

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Cognitive screening and neuropsychological evaluations are vital for children and young adults with childhood-onset systemic lupus erythematosus (SLE), yet their implementation in routine care is inconsistent. A survey of members from the Childhood Arthritis and Rheumatology Research Alliance revealed that while a majority believe cognitive dysfunction is common and supports routine screening, only 61% regularly ask about cognitive issues, and a mere 8% conduct neuropsychological evaluations. Barriers such as time constraints, uncertainty in tool use, and limited access to services hinder proper assessment, highlighting the need for streamlined tools and improved service access.

Original Source(s)

The Missing Step in Pediatric Lupus Care

  • by Henry Thomas

  • March 17, 2026

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