Clinical Guidelines
National Leadership in Fontan Outcomes Research
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April 1, 2026
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2 min
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The study analyzed 1,121 patients with complex congenital heart disease.
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60% faced Fontan-related adverse events.
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41% experienced arrhythmias, which increased with age.
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58% had acquired comorbidities, including asthma.
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Over a third of the participants had anxiety-related disorders.
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Antithrombotic therapy was widely used among participants.
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Phoenix Children’s became a leading contributor to the Fontan Outcomes Network.
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Coordinated care is crucial for this patient population.
